Tag Archive for acceptance

Ahh! Vacation in a Wheelchair

May 20, 2012 was upon us and I was packed and ready; ready to go on vacation to Orlando at Grand Beach Resort.

I got my suitcase and music bag ready and sat it by the door. I put on my wheelchair legs, which I rarely use.  I was so pumped up for a week of relaxation and fun. The door goes knock, knock and I open it, there was my nephew. He came with my mom to help put my wheelchair in the car, we all get to a point that the wheelchair becomes too heavy to lift. Have you had that situation where you are limited in places you can go because there is no one to put your wheelchair in their car? I bet you have but remember there still are ways, like riding the bus.  If you have a support coach to help or you can make new friends who can and are willing to lift your wheelchair, etc. It can be done!

We continued on the interstate to our destination. We arrived and out came my brother in law to help unpack the car and lift my wheelchair out. We headed up the elevator to our room where I got to unpack my clothes on my bed. Now I was ready for the week of fun and relaxation.

The week consisted of swimming,  relaxing by the pool, hanging out in room watching TV, going out to  eat a few times and wheeling around by the lake. This was great and I did it all even with a disability. Again, I had help lifting the wheelchair in and out of the car.

I was just another human being on vacation. You can do things too, live on your own, go on vacation, go to movies, go out to eat, attend events, and so much more!

Get off that butt and start doing because sitting and complaining will get you nowhere!

Squeak, squeak here we come.

Rolling with the Blues

I attended The Third Annual Brick City Blues Festival at Ocala Entertainment Complex, as a vender with a few of my friends/business team members of our One24 business (www.tjmoon.124online.com).

We all had a great time listening to music, eating food, running our booth and giving out samples of our product. I loved being able to go to an event in my community where a lot of people were, no matter, race, color, age, gender or even disability. Everyone was out there to enjoy them self and check out all the venders, no one cared about anything else.

I was at my booth and rolling around and people were saying “Hello” to me.  Some of them knew me – about half the crowd, and even those who didn’t know me. No one looked down on me because I had a disability but treated me like everyone else.

All people can become even more a part of the community if they got out of the house and went to events like this, went to social events and even just did fun things in the community. Doing this shows people that you are like anyone else and can do things. Plus they get to know you and see that you are a good person and not that different than themselves.

My friends, Janie, Fred and Eric, who came with me to the blues festival and helped, just treated me like a friend and business team member of One24. There was no feeling sorry for the good looking man in the wheelchair or thinking I wasn’t capable of things but we were all equal and were there to have fun and promote our great business that allows people to get healthier while making some extra money at the same time.  I even saw a couple other people with disparities that were at the event.

Thanks to my team and everyone at the event who did not treat me any different than themselves. Get out there and change your life, others and start living life to the fullest despite your disability or anything else!

Squeak, squeak, I think your tires need some grease because your wheelchair has probably been sitting there awhile and wants to get out.

Rolling the Track at the Relay For Life Event

What have you done in the community in the last couple months? Attend an event, help someone or just go to movies?

I attended an overnight charity event on April 13 and 1, called Relay for Life. You may be wondering how I was treated by others since I am in a wheelchair, well hold on we will get there.

Relay For Life is a life-changing event that gives everyone in communities across the globe a chance to celebrate the lives of people who have battled cancer, remember loved ones lost, and fight back against the disease.

At Relay, teams of people camp out at a local high school, park, or fairground and take turns walking or running around a track or path. Because cancer never sleeps, Relays are overnight events up to 24 hours in length.Relayers do not have to walk all night, but each team is asked to have a representative on the track at all times during the event.

You may be wondering how someone with a disability participates at this event. The answer is, like anyone else would!

I arrived at the event early so I could help setup and got everything going. Relay started and I helped at our tent for a couple hours, selling food, drinks and other things. I got on the track and started rolling, yes that’s right a man in a wheelchair was about to make a lap around the track!

I circled the track looking at what all the teams were doing and what I wanted to buy. I kept making my way around the track and the whole way around I kept hearing people call my name and cheer me on, wow! Now if it ended here, this would be a worthless blog to read, but it doesn’t.

They had many different activities for teams to participate in the whole night, talent/non talent show, pie eating contest, karaoke and much more. Well guess what, this fellow entered into many of the activities. One was the talented show, so I decided I would do something different and get up in front of everyone and dance in my wheelchair to this upbeat song (http://www.youtube.com/watch?v=yGnm9uwu0gs). Man did I bust a move and everyone was shouting and cheering me on the whole time.

Another was the whip cream pie and the first one to find the whistle with their mouth and blow it won. Sorry to say but I came in third but that was not the end for me, so I decided to take the whole pie and smash it in my own face. Everyone laughed and had a great time.

Most people with disabilities are so afraid what others will think, that they sit at home and do nothing. That can change if they just decide to get out there and do because people will accept you, and if they don’t forget them because it’s your life and you will be living it like you want. No more sitting on your behinds and feeling sorry for yourself, it will get you nowhere!

Remember, get out into the community. Have fun. Live your life and keep squeaking those wheels.

A Day of Shopping Through My Eyes as I Roll Around in the Wheelchair

Have you ever wondered how someone with a disability goes shopping? Today I’m going to discuss two different situations about a person with a disability shopping.

Having help – Sometimes a person with a disability has help when shopping. I’ll give an example. A few days ago, I went shopping with my disability support coach. We went to Aldi and I had my shopping list with us. Going through the store, I saw that there were things which I could reach right from my wheelchair… But what about the things out of my reach? Or worse yet, the items that were still out of my reach, even when I propped myself up? My support coach helped me get the things I needed from the store, but could not personally reach on my own, without injuring myself.

Now what if you had no one with you? How are you going to get everything you need and want? I hope you will not injure yourself.

Without help – I had to go shopping on a different day, and this time I had no one to go with me. I decided to go to Wal-Mart by myself. The situation was the same, in that I grabbed the items I could reach. But what about the things that were high up, out of my reach? Do you think I said “Just forget it.” and only got the things I could reach? Do you think I just gave up, and came back another day?

No way, I say!

I had a mouth, and even though I was nervous (I don’t like asking for help because it may make me look bad), I had to open it and ask for help. One thing I needed was pasta, and it was on the very top shelf. No one was around that isle. I still went through the store until I found someone and asked them to help me. Everything turned out great, and I got everything on my list and more.

I know having a disability may make you think that others look at you as if you are stupid, but they can eat mud, because you know you are much better than that!!!

Start living your life, despite your difference, and keep squeaking those wheels because no one can stop you but you!

Andre McCollins – a person with a developmentally disability is tortured.

Previously posted on View From The Darkside of the Moon.

Stand up for disability rights: Demand the video of Andre McCollins’s torture at the Judge Rotenberg Center

Cases of abuse of people with developmental disabilities are not new, but sadly, they rarely make the news. This week, we heard about a mother who is trying to obtain the surveillance video footage of her son’s 2002 torture at the hands of the Judge Rotenberg Center (JRC) in Canton, Massachusetts. Cheryl McCollins wants to publicize the video of what happened to her son, but the JRC obtained a court order sealing the video.

In 2002, Andre McCollins refused to take off his jacket when asked by a JRC staff member. In response, he was tied to a restraint board face-down with a helmet on his head. They kept him there for seven hours without one break — for food, water, or to use the bathroom. Whenever Andre screamed or tensed up, staff administered an electric shock for a total of 31 times. After three days in a comatose state, Andre was taken to Children’s Hospital, where he was diagnosed with acute stress response, which is similar to post-traumatic stress disorder, caused by the electric shocks.

The JRC’s lawyers asked the courts to seal the video of Andre’s torture because, according to them, the public won’t understand it outside of “context.” There is absolutely no context that can justify torture.

Even in cases with individuals with the most severe behavior problems, there are programs at other institutions with proven efficacy in reducing dangerous behaviors without using electric shocks or depriving students of food. Although experts in the developmental disabilities field have testified repeatedly against the JRC, you don’t have to be an expert to understand that what happened to Andre is torture. But the JRC doesn’t want you to believe that. They will continue to get away with their abusive practices unless someone lets the public see the video of what they did to Andre in the name of treatment.

This incident may have happened ten years ago, but the wounds are still raw and gaping. Andre hasn’t forgotten what happened to him, and neither has his mother. Andre will have no justice for as long as the JRC can bury the video of what they did to him. At its heart, this is a human rights issue. Those in positions of authority have a moral obligation to protect the rights of people like Andre against the interests of the JRC, and to let this video become public so that Andre can finally have justice. The video of his torture at the JRC needs to be released to the public, and it needs to be released now.

You can read about Andre’s story here: http://www.myfoxboston.com/dpp/news/undercover/teen-tied-and-shocked-for-hours-mom-calls-it-torture-20120219

The JRC is the only institution in America that still uses electric shock aversives as a means of “therapy” for its residents. Their aversive interventions also include food deprivation, restraint, and seclusion. The United Nations condemned the JRC’s practices, and the U.S. Department of Justice opened an investigation into their activities in 2010 after several reports of the activities of the JRC. For close to three decades, advocates have tried to close the institution, but have repeatedly failed to successfully pass legislation to end the use of aversives. Massachusetts’s Department of Developmental Services enacted regulations in late 2011 that prohibit the use of the electric shocks on any newly admitted student, but which grandfather in any student who was court-approved to receive the shocks before their enactment. The JRC is still operating, and for them, it’s business as usual. They don’t want the public to see what they do, because they know that the public will know intuitively and correctly that what they do is not treatment; it’s torture.

Advocates of disability rights who oppose restraint, seclusion, and aversives have long held that restraint, seclusion, and aversives are ONLY appropriate as a one-time, temporary and emergency response to a specific situation, as a last resort, where there is an immediate and imminent threat of harm to self or others. In this respect, aversives can be necessary as a last resort and as an emergency and temporary measure. They have no proven efficacy in the long-term to reduce and eliminate problematic behaviors such as self-harm or hurting others or destroying property. If they did, then why would some JRC residents still be there after five or ten years, or more, and still have the same behavioral profile, and still be receiving the electric shocks? The answer is that they wouldn’t. The JRC claims that its techniques save lives; this is misleading and dangerous. Aversives have no efficacy as a long-term treatment, and can cause Post-Traumatic Stress Disorder and otherwise be very emotionally damaging to people subjected to their use.

You can read more about the JRC and restraint and seclusion and aversives issues at http://www.autismeducationproject.org including reports from a number of government and non-profit organizations.

The abuse and torture of the disabled must stop.

Keep squeaking those wheels.

 

The Lone Advocate

The Lone Advocate – But where is Tonto?

Hi Ho Wheels! This is the story of one of the bravest characters to appear in the east of the west. He was a fabulous individual who was all about bringing the world together no matter what race, color, age, disability, etc. He is known as the Lone Advocate.

One day a town woke up in turmoil.  People where fighting and not being included in everyday things. The town was going downhill, when out of nowhere comes the magnificent Lone Advocate with his trusty wheelchair.

He starts speaking to the town about peace and how everyone is created equal. He made some progress, so he decided to go talk to the legislators and get a settlement that all will benefit from. The schools began including everyone and you started seeing more people with disabilities doing things in the community.

It has been another successful outcome for The Lone Advocate. On to the next town you can hear him shout out, “HI Ho Wheels away!!!”

If you have a disability – then you need to be the Lone Advocate.  Talk with your legislators, get into the community more.  Show everyone that you are just like everyone else despite your disability.

Keep those wheels a squeaking and a rolling!

Students Traumatized in Special Education Across America, Seclusion, Restraint, and Aversives

From Georgia:Families Against Restraint And Seclusion

Students Traumatized in Special Education Across America, Seclusion, Restraint, and Aversives Scream Rooms when will America say enough is enough?
Published on January 18, 2012 by Kymberly Grosso in Autism in Real Life

A urine soaked scream room. A child stuffed in a duffel bag. Vinegar soaked cotton balls put in a child’s mouth. Slapped on the head with plastic bottles. Child dragged through a playground across asphalt with pants down. Shoved to the floor and dead from asphyxiation. Handcuffed and duct-taped. Degraded. Dehumanized. Traumatized. Mob stories? No, it is just a scratch of the surface of what has happened to children in special education in the past year. Not in a third world country, but here in America.

Read more.

Expect the Unexpected

Have you ever had something very special happen unexpectedly?

Well, I have! I was attending our annual Ocala Business Leaders banquet where the new officers and board members were installed (I was installed as president but that was not the unexpected). The 2011 president just finished speaking when they called up Dan Kuhn, the Under Sheriff for Marion County.

I thought he was just another part of the program but next thing I know, he calls me up. I thought it was something for being 2012 president but then he started saying how proud of me he was and read a plaque that said:

“This Certificate of Commendation is being awarded to Thomas J. Moon in recognition of your contributions to the Ocala/Marion County community over the last several years. You are an outstanding example of the difference a young business person can make to the improvement in the quality of life of all Marion County citizens. Specifically, your volunteer work with the Children’s Alliance and your election to the position of President of the Ocala Business Leaders organization are just two instances of your community commitment.

Additionally, your life is an excellent illustration to others of how to overcome obstacles in life. Your advocacy on behalf of disabled persons is known state-wide.

Thank you for being a model of servant leadership for all Marion County citizens who seek to serve their fellow man.

May God bless you in all that you do.”

The plaque was signed by Sheriff Ed Dean. I was speechless and almost busted out in tears.

I didn’t expect this and I realize that more people knew about the things I do in the community and my advocacy work. Doing the right thing always pays off!

You can have this too so keep squeaking those wheels and doing the right thing!

Looking Forward to a Better 2012

2011 has not been the best year for people with disabilities. There have been many cuts to the APD Waiver and to other services that help people with disabilities grow and become contributing members of society.  We still have discrimination, and that is hurting people with disabilities and it is limiting our growth in society.  Additionally, persons with disabilities do not have a presence in society at many events, meetings, social activities, etc.

This all needs to change in 2012.  Society needs to stop limiting people with disabilities. A few ways this can be done is

  • no more cuts to the budget
  • everyone should start accepting people with disabilities and give them a chance
  • we need start including everyone in schools, at events, meetings and more
  • those with disabilities need to get out and be self-advocates

We can do this and make 2012 the best year ever!!!  Keep squeaking those wheels.

Reno speards the word and educates about autism.

From Renos World.  This kid rocks.

The Curious Kids learn about Asperger Syndrome with Reno. Produced by Roise Emery

Please help me spread autism awareness in your community! Thank you WGCU, Rosie Emery and the Curious Kids hosts for inviting me to be on the Curious Kids Show to help raise Autism Awareness. The entire Curious Kids show will be on December 17th. Please share with your friends and family!

Reno – keep making noise – the squeaky wheel always gets noticed.

Thanks for all that you do.