Archive for Disabilities

Ahh! Vacation in a Wheelchair

May 20, 2012 was upon us and I was packed and ready; ready to go on vacation to Orlando at Grand Beach Resort.

I got my suitcase and music bag ready and sat it by the door. I put on my wheelchair legs, which I rarely use.  I was so pumped up for a week of relaxation and fun. The door goes knock, knock and I open it, there was my nephew. He came with my mom to help put my wheelchair in the car, we all get to a point that the wheelchair becomes too heavy to lift. Have you had that situation where you are limited in places you can go because there is no one to put your wheelchair in their car? I bet you have but remember there still are ways, like riding the bus.  If you have a support coach to help or you can make new friends who can and are willing to lift your wheelchair, etc. It can be done!

We continued on the interstate to our destination. We arrived and out came my brother in law to help unpack the car and lift my wheelchair out. We headed up the elevator to our room where I got to unpack my clothes on my bed. Now I was ready for the week of fun and relaxation.

The week consisted of swimming,  relaxing by the pool, hanging out in room watching TV, going out to  eat a few times and wheeling around by the lake. This was great and I did it all even with a disability. Again, I had help lifting the wheelchair in and out of the car.

I was just another human being on vacation. You can do things too, live on your own, go on vacation, go to movies, go out to eat, attend events, and so much more!

Get off that butt and start doing because sitting and complaining will get you nowhere!

Squeak, squeak here we come.

Rolling with the Blues

I attended The Third Annual Brick City Blues Festival at Ocala Entertainment Complex, as a vender with a few of my friends/business team members of our One24 business (www.tjmoon.124online.com).

We all had a great time listening to music, eating food, running our booth and giving out samples of our product. I loved being able to go to an event in my community where a lot of people were, no matter, race, color, age, gender or even disability. Everyone was out there to enjoy them self and check out all the venders, no one cared about anything else.

I was at my booth and rolling around and people were saying “Hello” to me.  Some of them knew me – about half the crowd, and even those who didn’t know me. No one looked down on me because I had a disability but treated me like everyone else.

All people can become even more a part of the community if they got out of the house and went to events like this, went to social events and even just did fun things in the community. Doing this shows people that you are like anyone else and can do things. Plus they get to know you and see that you are a good person and not that different than themselves.

My friends, Janie, Fred and Eric, who came with me to the blues festival and helped, just treated me like a friend and business team member of One24. There was no feeling sorry for the good looking man in the wheelchair or thinking I wasn’t capable of things but we were all equal and were there to have fun and promote our great business that allows people to get healthier while making some extra money at the same time.  I even saw a couple other people with disparities that were at the event.

Thanks to my team and everyone at the event who did not treat me any different than themselves. Get out there and change your life, others and start living life to the fullest despite your disability or anything else!

Squeak, squeak, I think your tires need some grease because your wheelchair has probably been sitting there awhile and wants to get out.

A Day of Shopping Through My Eyes as I Roll Around in the Wheelchair

Have you ever wondered how someone with a disability goes shopping? Today I’m going to discuss two different situations about a person with a disability shopping.

Having help – Sometimes a person with a disability has help when shopping. I’ll give an example. A few days ago, I went shopping with my disability support coach. We went to Aldi and I had my shopping list with us. Going through the store, I saw that there were things which I could reach right from my wheelchair… But what about the things out of my reach? Or worse yet, the items that were still out of my reach, even when I propped myself up? My support coach helped me get the things I needed from the store, but could not personally reach on my own, without injuring myself.

Now what if you had no one with you? How are you going to get everything you need and want? I hope you will not injure yourself.

Without help – I had to go shopping on a different day, and this time I had no one to go with me. I decided to go to Wal-Mart by myself. The situation was the same, in that I grabbed the items I could reach. But what about the things that were high up, out of my reach? Do you think I said “Just forget it.” and only got the things I could reach? Do you think I just gave up, and came back another day?

No way, I say!

I had a mouth, and even though I was nervous (I don’t like asking for help because it may make me look bad), I had to open it and ask for help. One thing I needed was pasta, and it was on the very top shelf. No one was around that isle. I still went through the store until I found someone and asked them to help me. Everything turned out great, and I got everything on my list and more.

I know having a disability may make you think that others look at you as if you are stupid, but they can eat mud, because you know you are much better than that!!!

Start living your life, despite your difference, and keep squeaking those wheels because no one can stop you but you!

A Young Advocate Goes Up Against the Florida Government – Part 1:

The adventure started on one bright and shiny January morning in Florida. The young advocate named Thomas Moon woke up, ready to take on the day!

The young advocate packed his bags into his trusty Peace Mobile, and made his way to Tallahassee, the state capital. Along the way, he made peace between his fellow Americans. He felt it’s what any true American should do.

Only a few of his close friends knew why he was going to Tallahassee, in the first place. Upon arriving at his destination, the young advocate unpacked his bags in his lovely hotel suite. Then, he proceeded to walk downstairs and try to locate his good friend and her service dog.

On his way, he overheard a discussion. Someone was talking about service dogs, and how they should be allowed in schools, as well as many other places. Right away, he knew it was his good friend. They caught up for a bit, before having dinner with a group of other advocates for people with disabilities. This is the reason the young advocate decided to go on this adventure, and travel to the state’s capital.

After dinner he got together with his friend, and a few other people. They discussed how they were going to speak to many different legislators, the next day…

Until the adventure continues, squeak those wheels and don’t let anyone say you can’t!

Parents Blame School for Disabled Son’s Death

From Atlanta:

ATLANTA (CN) – Parents claim two special education teachers assaulted and battered their disabled son so badly he died from the abuse.
Ronald and Arthalia Hatcher sued the Fulton County School District, the Fulton County School Board, Fulton County Superintendent Robert Avossa, special education teachers Melanie Pickens and Katherine Dorn Durden, and 15 other Fulton County public school employees, in Fulton County State Court.
The Hatchers say their son Aaron, a special-needs student, suffered abuse at the hands of his public schoolteachers, Pickens and Durden.
“Aaron suffered from cerebral palsy, muscular dystrophy and other disabilities,” the complaint states. “As a result of his disabilities, Aaron could not walk or talk, and had other serious developmental issues and was unable to care for himself and required constant care and supervision.”
The Hatchers say they enrolled Aaron in public school to give him “as normal a life as possible.”
But they say instead of caring for him, Aaron’s middle school and high school teachers abused him physically and emotionally.
They claim Pickens confined Aaron in isolated places, physically restrained him and screamed at and berated him to punish him for “expressing himself,” and that Durden placed a homemade neck brace around his neck to restrain him.
“Unfortunately, the Hatchers’ trust was misplaced,” the complaint states. “Unbeknownst to plaintiffs, Aaron began suffering abuse within Fulton County schools as far back as 2004. From 2004 to 2007, Aaron was a student at Hopewell Middle school, where he was in defendant Melanie Pickens’ classroom.
“Ms. Pickens abused Aaron and other special needs students in her classroom physically, verbally and emotionally. Ms. Pickens’ conduct was investigated and her treatment of students was known to the school board. Nevertheless, plaintiffs were not made aware by the Fulton County School District of the abuse suffered by their son.
“Unfortunately, escaping Hopewell Middle School did not mean Aaron’s abuse would end. Aaron suffered still more abuse at the hands of his special education teacher at Roswell High School, defendant Katherine Dorn Durden. It was while Aaron was in Mrs. Durden’s class that the plaintiffs first became aware that Aaron had been mistreated at Hopewell Middle School.
“While in Mrs. Durden’s class, Aaron came home with bruises on his back and hands, making it clear that he was not being properly secured in his chair. Further, and without parental or medical consent, Mrs. Durden took it upon herself to twist and then constrain Aaron’s neck in a makeshift neck brace apparently because she did not like the way Aaron was forced to twist his neck in order to breathe. While a student in Mrs. Durden’s class, Aaron was repeatedly rushed to the hospital from school as a result of the abuse.
“Plaintiffs repeatedly sent messages to the school about Mrs. Durden. They requested that Aaron be moved into a different special education class and had meetings with the principal, all to no avail.
“Tragically, Aaron died on March 19, 2011 following the abuse he suffered at Roswell High School. Further compounding this tragedy, plaintiffs only found out about the earlier abuse by Ms. Pickens after Aaron’s death, despite the fact that the Fulton County School District had previously completed their own internal investigation which confirmed the acts of abuse against Aaron in middle school. Had they known, as school board personnel knew, that their extremely fragile son had suffered such abuse within a Fulton County school’s special education class, they would never have allowed him to enter Roswell High School, and Aaron might still be alive today. The teachers, paraprofessionals, medical personnel, administrators, and board members of the Fulton County School District repeatedly failed Aaron Hatcher and his parents, and the Hatchers have paid the ultimate price.”
The Hatchers claim: “Defendants knew or should have known that defendant Melanie Pickens had no training or other credentials equipping her to teach students with severe special needs and that she was routinely and systematically abusing the children in her classroom,” but failed to act.
They add: “It is nearly impossible to put into words the utter and complete terror Aaron must have felt as he was screamed at, isolated, and berated by defendant Melanie Pickens or how terrified he must have been when defendant Katherine Dorn Durden repeatedly cut off his airway with her homemade neck brace.”
The Hatchers seek compensatory and punitive damages for assault and battery, false imprisonment, intentional infliction of emotional distress, negligence, negligent hiring and retention, constitutional violations, and violations of the Americans with Disabilities Act, the Individuals with Disabilities Education Act, the Rehabilitation Act, and Georgia laws.
They are represented by Jarrod Oxendine, with Oxendine and Sauls.

Original story

Keep squeaking those wheels.

Andre McCollins – a person with a developmentally disability is tortured.

Previously posted on View From The Darkside of the Moon.

Stand up for disability rights: Demand the video of Andre McCollins’s torture at the Judge Rotenberg Center

Cases of abuse of people with developmental disabilities are not new, but sadly, they rarely make the news. This week, we heard about a mother who is trying to obtain the surveillance video footage of her son’s 2002 torture at the hands of the Judge Rotenberg Center (JRC) in Canton, Massachusetts. Cheryl McCollins wants to publicize the video of what happened to her son, but the JRC obtained a court order sealing the video.

In 2002, Andre McCollins refused to take off his jacket when asked by a JRC staff member. In response, he was tied to a restraint board face-down with a helmet on his head. They kept him there for seven hours without one break — for food, water, or to use the bathroom. Whenever Andre screamed or tensed up, staff administered an electric shock for a total of 31 times. After three days in a comatose state, Andre was taken to Children’s Hospital, where he was diagnosed with acute stress response, which is similar to post-traumatic stress disorder, caused by the electric shocks.

The JRC’s lawyers asked the courts to seal the video of Andre’s torture because, according to them, the public won’t understand it outside of “context.” There is absolutely no context that can justify torture.

Even in cases with individuals with the most severe behavior problems, there are programs at other institutions with proven efficacy in reducing dangerous behaviors without using electric shocks or depriving students of food. Although experts in the developmental disabilities field have testified repeatedly against the JRC, you don’t have to be an expert to understand that what happened to Andre is torture. But the JRC doesn’t want you to believe that. They will continue to get away with their abusive practices unless someone lets the public see the video of what they did to Andre in the name of treatment.

This incident may have happened ten years ago, but the wounds are still raw and gaping. Andre hasn’t forgotten what happened to him, and neither has his mother. Andre will have no justice for as long as the JRC can bury the video of what they did to him. At its heart, this is a human rights issue. Those in positions of authority have a moral obligation to protect the rights of people like Andre against the interests of the JRC, and to let this video become public so that Andre can finally have justice. The video of his torture at the JRC needs to be released to the public, and it needs to be released now.

You can read about Andre’s story here: http://www.myfoxboston.com/dpp/news/undercover/teen-tied-and-shocked-for-hours-mom-calls-it-torture-20120219

The JRC is the only institution in America that still uses electric shock aversives as a means of “therapy” for its residents. Their aversive interventions also include food deprivation, restraint, and seclusion. The United Nations condemned the JRC’s practices, and the U.S. Department of Justice opened an investigation into their activities in 2010 after several reports of the activities of the JRC. For close to three decades, advocates have tried to close the institution, but have repeatedly failed to successfully pass legislation to end the use of aversives. Massachusetts’s Department of Developmental Services enacted regulations in late 2011 that prohibit the use of the electric shocks on any newly admitted student, but which grandfather in any student who was court-approved to receive the shocks before their enactment. The JRC is still operating, and for them, it’s business as usual. They don’t want the public to see what they do, because they know that the public will know intuitively and correctly that what they do is not treatment; it’s torture.

Advocates of disability rights who oppose restraint, seclusion, and aversives have long held that restraint, seclusion, and aversives are ONLY appropriate as a one-time, temporary and emergency response to a specific situation, as a last resort, where there is an immediate and imminent threat of harm to self or others. In this respect, aversives can be necessary as a last resort and as an emergency and temporary measure. They have no proven efficacy in the long-term to reduce and eliminate problematic behaviors such as self-harm or hurting others or destroying property. If they did, then why would some JRC residents still be there after five or ten years, or more, and still have the same behavioral profile, and still be receiving the electric shocks? The answer is that they wouldn’t. The JRC claims that its techniques save lives; this is misleading and dangerous. Aversives have no efficacy as a long-term treatment, and can cause Post-Traumatic Stress Disorder and otherwise be very emotionally damaging to people subjected to their use.

You can read more about the JRC and restraint and seclusion and aversives issues at http://www.autismeducationproject.org including reports from a number of government and non-profit organizations.

The abuse and torture of the disabled must stop.

Keep squeaking those wheels.

 

The Lone Advocate

The Lone Advocate – But where is Tonto?

Hi Ho Wheels! This is the story of one of the bravest characters to appear in the east of the west. He was a fabulous individual who was all about bringing the world together no matter what race, color, age, disability, etc. He is known as the Lone Advocate.

One day a town woke up in turmoil.  People where fighting and not being included in everyday things. The town was going downhill, when out of nowhere comes the magnificent Lone Advocate with his trusty wheelchair.

He starts speaking to the town about peace and how everyone is created equal. He made some progress, so he decided to go talk to the legislators and get a settlement that all will benefit from. The schools began including everyone and you started seeing more people with disabilities doing things in the community.

It has been another successful outcome for The Lone Advocate. On to the next town you can hear him shout out, “HI Ho Wheels away!!!”

If you have a disability – then you need to be the Lone Advocate.  Talk with your legislators, get into the community more.  Show everyone that you are just like everyone else despite your disability.

Keep those wheels a squeaking and a rolling!

Students Traumatized in Special Education Across America, Seclusion, Restraint, and Aversives

From Georgia:Families Against Restraint And Seclusion

Students Traumatized in Special Education Across America, Seclusion, Restraint, and Aversives Scream Rooms when will America say enough is enough?
Published on January 18, 2012 by Kymberly Grosso in Autism in Real Life

A urine soaked scream room. A child stuffed in a duffel bag. Vinegar soaked cotton balls put in a child’s mouth. Slapped on the head with plastic bottles. Child dragged through a playground across asphalt with pants down. Shoved to the floor and dead from asphyxiation. Handcuffed and duct-taped. Degraded. Dehumanized. Traumatized. Mob stories? No, it is just a scratch of the surface of what has happened to children in special education in the past year. Not in a third world country, but here in America.

Read more.

More on “Scream Rooms”

From the West Hartford News.  A reporter who is the mom of a special needs student.

“They are essentially jail cells — most of them can only be opened from the outside — and most are smaller than a walk-in closet, painted white and with bright lights, the kind that only exacerbate sensory issues in kids with autism and other special needs. I’ve seen kids as young as 4 wailing away in the room as class is in session just a few feet way. (I wonder if it’s disconcerting to the other special needs kids in class.) For those with poor reasoning and coping skills, hearing others in the room creates constant anxiety that is bound to make them act up and get put in the room.”

Read the entire article.

The abuse of our children with special needs and disabilities has to stop.  We need to keep making noise – keep squeaking those wheels.

 

 

 

Experts Say “Scream Rooms” Untherapeutic, Harmful to Children and Others at School

Here is a follow up on the “Scream Rooms” that are being used in Connecticut public schools.

By KATHLEEN MEGAN, kmegan@courant.com The Hartford Courant

Experts Call ‘Scream Rooms’ Untherapeutic, Harmful To Children And Others At School – State Broadening Its Investigation In Middletown; Civil Rights Complaint Filed

Please click to view news video.

Every morning Michael Sexton hears the same thing from his 8-year-old son: “Daddy, I don’t want to go to school. Daddy, I don’t want to go.”

Sexton says it’s because his son, Robert, spent too much time alone in a small room — sometimes called a scream room, a timeout room or a safe room — as a way to control his behavior at a public school run by Area Cooperative Regional Education Services in North Haven.

Sexton heard about the outcry in Middletown last week when parents learned that children with troublesome behaviors at Farm Hill School were put into a 10-by-6-foot room with a window on the door — as a place to calm down.

Sexton said he was glad to hear that people were speaking out against the use of these rooms.

“It’s like torture for kids,” said Sexton, who lives in New Britain. “That’s like sitting in jail, sitting behind bars. It’s not good for them.”

Many national and state advocates for children agree, and say that “scream rooms” or seclusion rooms should be banned, calling them untherapeutic and harmful to children and to the school community.

“We think it’s an absolutely horrific practice that has no basis in research,” said Denise Marshall, executive director of the Council of Parents, Attorneys and Advocates in Towson, Md. “It’s extremely traumatic to everyone. … We have had situations where students have died in this type of room.”

Jane Hudson, a senior staff attorney with the National Disability Rights Network in Washington, said there was no evidence that secluding a child had any therapeutic value.

“These are archaic methods to control behavior and to try to keep people safe,” she said. “Can you imagine how frightening this is for a 6-year-old? Of course, they are going to react, that’s why the screaming occurs: ‘Get me out of here!'”

Hudson said it was far better to provide “lots of training for staff about how to de-escalate children and positive behavior intervention. … Schools are behind the curve in getting the appropriate training.”

In Connecticut, a group of attorneys and advocates for children with disabilities filed a complaint Friday with the Office for Civil Rights of the U.S. Department of Education, charging that the practice of using the seclusion room chiefly or exclusively for children with special needs at Farm Hill School violates their civil rights.

U.S. Sen. Thomas Harkin, D-Iowa, has introduced legislation that would ban the use of seclusion rooms for children in schools.

“I think Connecticut needs to know that this is an issue the whole country has been grappling with,” said Mary Beth Bruder, director of the A.J. Pappanikou Center for Excellence in Developmental Disabilities at the University of Connecticut Health Center, “and the whole country is moving toward banning seclusion and restraint.”

Law Requires Monitoring And Parental Notification

In Connecticut, the use of seclusion rooms is allowed under a 2007 law for students with disabilities “as specified in an Individualized Education Program (IEP) … as determined by a team of professionals that includes parents of the child.”

The law goes on to provide information about how and when a child can be secluded and calls for frequent monitoring and notification of parents when a child has been in a seclusion room.

The outrage in Middletown erupted when parents said they witnessed two school staff members holding a door shut on a “scream room” while a child inside kicked and screamed uncontrollably. A meeting was held last week at which parents said that their children were distracted and intimidated by the screaming, and at least one child said that it was “scary” and made it hard to concentrate on her work.

“This is a classic example of why this kind of technique should never be used in a school,” Marshall said. “It’s just traumatic for a school.”

At a press conference Friday, Middletown Superintendent Michael Frechette addressed an issue that has been of concern — the occasional use of the timeout rooms by students without IEP programs.

“I wanted to make clear that I have directed all administrative staff in the district to cease, immediately, using timeout rooms for students who do not have specialized, legally created IEPs,” Frechette said.

Frechette said that the timeout rooms would be relocated to a new “suite area” on the second floor of the building and that the rooms would be used by “a very small, specialized population with behavioral, emotional or other support needs.”

It is this practice — using the rooms chiefly or only for children with disabilities — that prompted the complaint filed against the Middletown public schools on Friday by 19 Connecticut lawyers and advocates for children with disabilities.

“It breaks my heart to say that children are learning in this school in Middletown that it’s acceptable to treat children with disabilities as if they don’t have any rights,” said Jennifer Laviano, a Sherman attorney who signed the complaint. “The image of a child thinking it’s acceptable for adults to treat other children as second-class citizens, locking them away, banging on the door. …”

She said she also was incensed to hear that the Middletown district “will simply move this room so as not to bother the other children.”

James McGaughey, executive director of the state Office of Protection and Advocacy for Persons with Disabilities, said that he was broadening the scope of his office’s investigation at Farm Hill to include another elementary school in Middletown and possibly others.

“We began by interviewing administrators and touring this particular school,” McGaughey said, “but this appears to be a feature of other schools in Middletown as well.”

His investigation will look at whether any abuse or neglect has occurred at the schools. The use of seclusion rooms appears to be widespread in Connecticut, McGaughey said, because his office has been receiving calls from parents in other towns who also are distressed with the use of timeout rooms at their children’s schools.

He said he’s had telephone calls from parents who say that particular schools “made us sign a paper to say it’s OK to do this.”

Almost Every Day

Michael Sexton said that when he enrolled his son, Robert, in the ACES school in North Haven, he was told that a timeout room might be used for his son.

“They said they don’t use it often and they won’t put him in there unless they have to,” Sexton said, but he said that Robert, who has attention difficulties and epilepsy, came home complaining that he was put in the room almost every day.

Sexton said that his son began begging not to go to school. After about 18 months at ACES, Sexton said that he withdrew his son last spring. Now Robert attends a school run by the Wheeler Clinic in Plainville.

Robert’s experience at the Wheeler Clinic has been much better, Sexton said, but his son still often begs not to go to school even though a timeout room is not used there.

“It’s post-traumatic stress,” Sexton said.

Robert Parker, a spokesman for ACES, said that the timeout rooms at the ACES special education schools are called “alternative learning areas.”

He said that staff members were trained to use them properly, but that they were “used relatively infrequently and only when absolutely necessary.”

A student might be sent to a timeout room, he said, when they “can no longer successfully learn in the classroom because of their behavior” or when they are a danger to themselves or others.

Diane Willcutts, an education advocate from West Hartford, said that parents whose children have been put in seclusion rooms have told her that their children are “throwing up at the thought of going back to school. They’ll start talking about the size of the room. … They are traumatized.”

She said she knows of a kindergartner who was locked in a bathroom and spent the time rocking back and forth, banging on a pipe. When the child went home, her mother found a softball-sized bruise on her back.

“It’s hard to imagine a 5-year-old child in imminent danger or causing imminent danger to others who couldn’t be helped any other way,” Willcutts said. “There are other ways to help kids without locking them in a room.”

One mother said that her 10-year-old son, who is mildly autistic and attends a public school in the Farmington Valley, is in a timeout room almost every day, sometimes spending an entire afternoon there.

“It’s a shame because he measures the success of his day on how long he spent in the timeout room,” said the mother, who asked that her identity and town not be revealed. “And that’s wrong. That’s really not the way it should be.”

She said she believes that he winds up in the room — often with the door open — because his educational program is lacking and because staff are not sufficiently trained.

“My issue has always been, if you don’t think you can handle my child, then you need to ask for help,” she said.

A timeout room should be “a last resort,” she said, not something that happens every day.

“He hates it,” she said. “He says it’s cold in there.”

‘An Act Of Desperation’

Ross Greene, the author of “The Explosive Child” and “Lost at School” and an associate clinical professor at Harvard Medical School, said that the use of timeout rooms could be greatly diminished if schools were more pro-active.

Throughout the country in recent years, he said, there’s been a move to dramatically reduce the use of seclusion and restraints in juvenile prisons and in mental health inpatient units.

But at schools, Greene said, the use of seclusion remains “extremely popular.”

When students begin spending a lot of time in seclusion rooms, Greene said, it’s a clear indication that a child is not understood and is not receiving the care he needs.

“It’s an act of desperation” when a teacher brings a child to a seclusion room, he said. “It’s what adults do when things are already completely out of control to calm things down.”

Greene said that much of this trouble can be avoided if an effort is made to help kids acquire crucial skills: flexibility, frustration tolerance, problem-solving and others.

“I think we should be bending over backward to not be using them and to not be needing them,” he said of the rooms.

If schools are using the seclusion rooms often, he said, certain questions arise. “Do we have adequate staff? Are they adequately trained? Are we overwhelmed by numbers? Do these kids need treatment we may not be able to provide?”

Keep squeaking your wheels.  This has to stop.