Archive for Howard

Experts Say “Scream Rooms” Untherapeutic, Harmful to Children and Others at School

Here is a follow up on the “Scream Rooms” that are being used in Connecticut public schools.

By KATHLEEN MEGAN, kmegan@courant.com The Hartford Courant

Experts Call ‘Scream Rooms’ Untherapeutic, Harmful To Children And Others At School – State Broadening Its Investigation In Middletown; Civil Rights Complaint Filed

Please click to view news video.

Every morning Michael Sexton hears the same thing from his 8-year-old son: “Daddy, I don’t want to go to school. Daddy, I don’t want to go.”

Sexton says it’s because his son, Robert, spent too much time alone in a small room — sometimes called a scream room, a timeout room or a safe room — as a way to control his behavior at a public school run by Area Cooperative Regional Education Services in North Haven.

Sexton heard about the outcry in Middletown last week when parents learned that children with troublesome behaviors at Farm Hill School were put into a 10-by-6-foot room with a window on the door — as a place to calm down.

Sexton said he was glad to hear that people were speaking out against the use of these rooms.

“It’s like torture for kids,” said Sexton, who lives in New Britain. “That’s like sitting in jail, sitting behind bars. It’s not good for them.”

Many national and state advocates for children agree, and say that “scream rooms” or seclusion rooms should be banned, calling them untherapeutic and harmful to children and to the school community.

“We think it’s an absolutely horrific practice that has no basis in research,” said Denise Marshall, executive director of the Council of Parents, Attorneys and Advocates in Towson, Md. “It’s extremely traumatic to everyone. … We have had situations where students have died in this type of room.”

Jane Hudson, a senior staff attorney with the National Disability Rights Network in Washington, said there was no evidence that secluding a child had any therapeutic value.

“These are archaic methods to control behavior and to try to keep people safe,” she said. “Can you imagine how frightening this is for a 6-year-old? Of course, they are going to react, that’s why the screaming occurs: ‘Get me out of here!'”

Hudson said it was far better to provide “lots of training for staff about how to de-escalate children and positive behavior intervention. … Schools are behind the curve in getting the appropriate training.”

In Connecticut, a group of attorneys and advocates for children with disabilities filed a complaint Friday with the Office for Civil Rights of the U.S. Department of Education, charging that the practice of using the seclusion room chiefly or exclusively for children with special needs at Farm Hill School violates their civil rights.

U.S. Sen. Thomas Harkin, D-Iowa, has introduced legislation that would ban the use of seclusion rooms for children in schools.

“I think Connecticut needs to know that this is an issue the whole country has been grappling with,” said Mary Beth Bruder, director of the A.J. Pappanikou Center for Excellence in Developmental Disabilities at the University of Connecticut Health Center, “and the whole country is moving toward banning seclusion and restraint.”

Law Requires Monitoring And Parental Notification

In Connecticut, the use of seclusion rooms is allowed under a 2007 law for students with disabilities “as specified in an Individualized Education Program (IEP) … as determined by a team of professionals that includes parents of the child.”

The law goes on to provide information about how and when a child can be secluded and calls for frequent monitoring and notification of parents when a child has been in a seclusion room.

The outrage in Middletown erupted when parents said they witnessed two school staff members holding a door shut on a “scream room” while a child inside kicked and screamed uncontrollably. A meeting was held last week at which parents said that their children were distracted and intimidated by the screaming, and at least one child said that it was “scary” and made it hard to concentrate on her work.

“This is a classic example of why this kind of technique should never be used in a school,” Marshall said. “It’s just traumatic for a school.”

At a press conference Friday, Middletown Superintendent Michael Frechette addressed an issue that has been of concern — the occasional use of the timeout rooms by students without IEP programs.

“I wanted to make clear that I have directed all administrative staff in the district to cease, immediately, using timeout rooms for students who do not have specialized, legally created IEPs,” Frechette said.

Frechette said that the timeout rooms would be relocated to a new “suite area” on the second floor of the building and that the rooms would be used by “a very small, specialized population with behavioral, emotional or other support needs.”

It is this practice — using the rooms chiefly or only for children with disabilities — that prompted the complaint filed against the Middletown public schools on Friday by 19 Connecticut lawyers and advocates for children with disabilities.

“It breaks my heart to say that children are learning in this school in Middletown that it’s acceptable to treat children with disabilities as if they don’t have any rights,” said Jennifer Laviano, a Sherman attorney who signed the complaint. “The image of a child thinking it’s acceptable for adults to treat other children as second-class citizens, locking them away, banging on the door. …”

She said she also was incensed to hear that the Middletown district “will simply move this room so as not to bother the other children.”

James McGaughey, executive director of the state Office of Protection and Advocacy for Persons with Disabilities, said that he was broadening the scope of his office’s investigation at Farm Hill to include another elementary school in Middletown and possibly others.

“We began by interviewing administrators and touring this particular school,” McGaughey said, “but this appears to be a feature of other schools in Middletown as well.”

His investigation will look at whether any abuse or neglect has occurred at the schools. The use of seclusion rooms appears to be widespread in Connecticut, McGaughey said, because his office has been receiving calls from parents in other towns who also are distressed with the use of timeout rooms at their children’s schools.

He said he’s had telephone calls from parents who say that particular schools “made us sign a paper to say it’s OK to do this.”

Almost Every Day

Michael Sexton said that when he enrolled his son, Robert, in the ACES school in North Haven, he was told that a timeout room might be used for his son.

“They said they don’t use it often and they won’t put him in there unless they have to,” Sexton said, but he said that Robert, who has attention difficulties and epilepsy, came home complaining that he was put in the room almost every day.

Sexton said that his son began begging not to go to school. After about 18 months at ACES, Sexton said that he withdrew his son last spring. Now Robert attends a school run by the Wheeler Clinic in Plainville.

Robert’s experience at the Wheeler Clinic has been much better, Sexton said, but his son still often begs not to go to school even though a timeout room is not used there.

“It’s post-traumatic stress,” Sexton said.

Robert Parker, a spokesman for ACES, said that the timeout rooms at the ACES special education schools are called “alternative learning areas.”

He said that staff members were trained to use them properly, but that they were “used relatively infrequently and only when absolutely necessary.”

A student might be sent to a timeout room, he said, when they “can no longer successfully learn in the classroom because of their behavior” or when they are a danger to themselves or others.

Diane Willcutts, an education advocate from West Hartford, said that parents whose children have been put in seclusion rooms have told her that their children are “throwing up at the thought of going back to school. They’ll start talking about the size of the room. … They are traumatized.”

She said she knows of a kindergartner who was locked in a bathroom and spent the time rocking back and forth, banging on a pipe. When the child went home, her mother found a softball-sized bruise on her back.

“It’s hard to imagine a 5-year-old child in imminent danger or causing imminent danger to others who couldn’t be helped any other way,” Willcutts said. “There are other ways to help kids without locking them in a room.”

One mother said that her 10-year-old son, who is mildly autistic and attends a public school in the Farmington Valley, is in a timeout room almost every day, sometimes spending an entire afternoon there.

“It’s a shame because he measures the success of his day on how long he spent in the timeout room,” said the mother, who asked that her identity and town not be revealed. “And that’s wrong. That’s really not the way it should be.”

She said she believes that he winds up in the room — often with the door open — because his educational program is lacking and because staff are not sufficiently trained.

“My issue has always been, if you don’t think you can handle my child, then you need to ask for help,” she said.

A timeout room should be “a last resort,” she said, not something that happens every day.

“He hates it,” she said. “He says it’s cold in there.”

‘An Act Of Desperation’

Ross Greene, the author of “The Explosive Child” and “Lost at School” and an associate clinical professor at Harvard Medical School, said that the use of timeout rooms could be greatly diminished if schools were more pro-active.

Throughout the country in recent years, he said, there’s been a move to dramatically reduce the use of seclusion and restraints in juvenile prisons and in mental health inpatient units.

But at schools, Greene said, the use of seclusion remains “extremely popular.”

When students begin spending a lot of time in seclusion rooms, Greene said, it’s a clear indication that a child is not understood and is not receiving the care he needs.

“It’s an act of desperation” when a teacher brings a child to a seclusion room, he said. “It’s what adults do when things are already completely out of control to calm things down.”

Greene said that much of this trouble can be avoided if an effort is made to help kids acquire crucial skills: flexibility, frustration tolerance, problem-solving and others.

“I think we should be bending over backward to not be using them and to not be needing them,” he said of the rooms.

If schools are using the seclusion rooms often, he said, certain questions arise. “Do we have adequate staff? Are they adequately trained? Are we overwhelmed by numbers? Do these kids need treatment we may not be able to provide?”

Keep squeaking your wheels.  This has to stop.

Barrier Free Park about to open in Boyton Beach

Barrier Free Park about to open in Boyton Beach.

The first few sentences of the news article say it all.

“Most people take for granted that when they come to a park, they can walk, run, climb, swing, and see and smell everything. Not everyone can.

Soon there will be a park for everyone.”

Wow a barrier free park that everyone can use no matter what their ability or disability.  Congratulations to Boyton Beach.  You really have heard those squeaky wheels.

 

APD cuts services – what a great Christmas present for the disabled.

From a friend in south Florida comes this holiday message.

Karen R Wagner PhD, BCBA-D, LMHC
President/CEO
Behavior Services of Brevard, Inc/TheBehaviorAnalyst.com

“Just in time for the holidays, APD is in a big push to discontinue services.  Those of you who have been around for a while may recognize this from several years ago, when notifications of reductions went out on Christmas eve, so those who were on vacation could not respond until it was too late.  Blaming the local folks is probably unwarranted, they will be fired if they talk to anyone, and the mandates are coming from a higher source.  However, services are being cut without notification.  One of our consumers finally received official notification three weeks after funding ran out, after his mother exchanged several emails with the area office.  We have several consumers whose services were cut in the past few weeks without notification to the WSC, consumer, or ourselves, as providers.  It seems to be picking up speed, as I would guess the plan is to slash services by the end of the year.

It seems there are several other things to prevent a fair defense of necessary services.  APD has told WSCs that all documentation must be sent digitally, however, the email portal is abnormally small, so the digital files cannot be sent.  After sending several times, many WSCs have to split files into several smaller files, multiplying the probability of the documentation being lost in the flurry of activity.  Most of the requested documentation is already in the consumer’s files at APD, so the reasons for requesting the documentation are fuzzy at best.

APD seems to have discontinued the Notice of Intent to reduce or deny services, in favor of an “Agency Action”, which just tells you the services are cut.  Parents don’t seem to be getting these until after the service has been discontinued. Parents still only have 10 days from the receipt of the letter to respond.  Please contact your parent advocacy resources, parent group members, and most importantly, YOUR LEGISLATORS!

One thing to be aware of: Despite the gloomy financial forecasting, state funding has never come from real estate taxes, or unemployment funds, or local municipalities.  Most agencies, including APD have always been funded by Florida sales taxes and other sources, the income from which have not changed much in the past few years.  It is impossible to find accurate income figures state-wide.  So why are services being slashed to consumers?  This appears to be a created crisis, giving legislators an opportunity to cut “social welfare” programs.

Medwaiver also has a sizable federal matching component, and based on recent figures, the “deficit” numbers seem to exclude the contributing federal match dollars, artificially inflating the shortfall. However, since the budget was set by the legislators, and has been shrinking every year, “shortfall” seems to be a misnomer.

Spread the word to consumers, families and advocates to check their mail, PO boxes, the consumer’s mail (if they live independently), or anywhere else the consumer may receive mail.  Requests for reconsiderations and hearings may need to be sent during the holidays.  Wish there was better news.”

Enjoy your Holy Days and keep squeaking those wheels.  We need to make enough noise – we need to be heard.

Keeping All Students Safe Act

Child In Florida School Being Restrained

Can you imagine we need Federal legislation to keep children with disabilities safe in our public schools.  That is almost unimaginable.

What is even more unimaginable is that the children need to be kept safe from their teachers and other school personnel.  Wow – sad but true.

Last year in Florida there were over 10,000 incidents of restraint in our public schools.  Nearly 5,000 were on students with disabilities in pre-K to 3rd grade.

If the states will not protect the most vulnerable children in our schools then I guess it is time for the Feds to step in and protect them.

The Keeping All Students Safe Act was introduced in the Senate by Chairman Tom Harkin this afternoon.  Chairman Harkin has shown an unwavering commitment to the safety and welfare of our nation’s children. This bill would promote the development of effective intervention and prevention practices that do not impose restraints and seclusion; protect all students from physical or mental abuse, aversive behavioral interventions that compromise health and safety, and any restraint imposed for purposes of coercion, discipline or convenience, or as a substitute for appropriate educational or positive behavioral interventions and supports.  Importantly the bill also works to ensure the safety of all students and school personnel and promote positive school culture and climate.

For more information on the Keeping All Students Safe Act.

Keep squeaking those wheels.  School is not supposed to hurt.

 

Reno speards the word and educates about autism.

From Renos World.  This kid rocks.

The Curious Kids learn about Asperger Syndrome with Reno. Produced by Roise Emery

Please help me spread autism awareness in your community! Thank you WGCU, Rosie Emery and the Curious Kids hosts for inviting me to be on the Curious Kids Show to help raise Autism Awareness. The entire Curious Kids show will be on December 17th. Please share with your friends and family!

Reno – keep making noise – the squeaky wheel always gets noticed.

Thanks for all that you do.

 

Groups Push for More Accessible Housing

Advocacy groups for the disabled have been pushing for accessible housing for years and our efforts have fallen on deaf ears.  The disabled just do not have a powerful or visible lobbying group.

Now we finally may see some action!

The retired population is realizing that significant numbers of seniors have a disability of one kind or another.  So they are finally joining us in the fight for accessible housing.

Seniors wield political power.  The various lobby groups that represent seniors are usually successful in accomplishing their goals. Let us hope any legislation or action that results will help all the disabled – NOT just seniors with disabilities.

Groups push for more accessible housing.

We need to all keep squeaking our wheels no matter how old or young we are.

Being Old, Disabled Or Vulnerable In Florida Can Be Hazardous To Your Health

You can abuse and neglect the disabled at an Assisted Living Facility in Florida – and you can still continue to run or work at the facility.  Yes, that is true.  There is no statute or administrative rule that prevents someone who has been held responsible for the abuse, neglect or even death of a resident of an ALF from being banned from running or working at an ALF.

Couple this with the fact that Governor Scott fired the head of the Long Term Ombudsman Council for being too aggressive in pursing complaints against  Florida Nursing Homes and other care facilities – and being disabled or aged in Florida can be dangerous to your health.

Rick Scott has formed a panel to look into the possibilities that care facilities for the aged and disabled may be harming our citizens.  Of course this is the same man who put the owner of a large chain of nursing homes in charge of the entity responsible to oversee and handle complaints from nursing homes.  The foxes are running the hen house.  We can expect no more from any commission that our Governor sets up.

The Miami Herald ran a series called Neglected to Death.  This investigated and documented numerous cases of abuse in our ALF’s and nursing homes.

This series ran in May and our vulnerable elderly and disabled are still without adequate protection.

At one time the State of Florida had the Human Rights Council and later the Florida Local Advocacy Council to oversee complaints and conditions in facilities for the disabled and elderly.  These were volunteers with no vested interested who gave of their time to inspect and investigate complaints and conditions.  They reported to the Governor’s office.

However, like the Ombudsman Council they were too aggressive and found too many problems with facilities that provided care to the vulnerable in our state.  Two years ago the council was abolished.  We no longer have a third party organization, or any organization for that matter, concerned with Human Rights Violations.

Being old or vulnerable in Florida can be hazardous to your health.

Governor Scott step up and appoint a third party organization to review Human Rights Violations.  It needs to be an organization of volunteers who have no vested or monetary interest in Nursing Homes, ALF’s or other facilities.

Make Florida a safe place for our elderly, disabled and vulnerable citizens.

Keep squeaking those wheels.

Previously posted on View From The Dark Side Of The Moon blog.

SB 144: Seclusion and Restraint on Students With Disabilities in Public Schools

Child In Florida School Being Restrained

Again this year we try to enact legislation that will help reduce the harmful and often abusive seclusion and restraint of our children with disabilities in our public schools.

Senator Anitere Flores is sponsoring SB 144.  Seclusion and Restraint on Students with Disabilities in Public Shools.

In a nutshell the legislation will do the following:

Seclusion and Restraint on Students With Disabilities in Public Schools; Requiring that manual physical restraint be used only in an emergency when there is an imminent risk of serious injury or death to the student or others; providing restrictions on the use of manual physical restraint; prohibiting the use of manual physical restraint by school personnel who are not certified to use district-approved methods for applying restraint techniques; requiring that each school medically evaluate a student after the student is manually physically restrained; prohibiting school personnel from placing a student in seclusion; providing requirements for the use of time-out; requiring that a school district report its training and certification procedures to the Department of Education, etc.

In the 2010 – 2011 School year we had over 10,000 incidents of restraint reported in our public schools.

Thank you Sen Flores for sponsoring this legislation.  We need to protect our children.

Remember School Is Not Supposed To Hurt.

Keep squeaking those wheels.  Ask your legislator to support or co-sponsor this legislation.

 

 

Riding the Short Bus is Not Supposed to Hurt

Yet another school bus driver is caught on camera abusing a student with disabilities.  Please I am in no way painting all bus drivers as abusive.  It is a hard and thankless job. However, we had numerous reports of school bus drivers abusing children physically or verbally.  Additionally, we have had numerous reports of children, especially children with disabilities being left on the bus.

Watch the video.

This should be an indication of a pattern.  School bus drivers need to be better screened, trained and monitored.  Our children, no matter what their ability or lack of ability, should be safe on the school bus.

Just as School is Not Supposed to Hurt – Riding the Short Bus is Not Supposed to Hurt.

The short bus, of course, is the bus for the children with special needs.  They are not allowed, in most school districts, to ride the regular school bus.  I actually remember the principal of an elementary school saying that she did not want “Those kids mixing with the normal students.”

This is an attitude that most find offensive.  It is also an attitude that most parents probably believe does not exist.  I can tell you that it does exist.  Our children; those who ride the short bus; those who have disabilities; those with special needs; are routinely segregated.

Most parents believe that their special needs children are better protected on the short bus.  They believe that their special needs children will be safer on the short bus.

Take a look at this video and you will see that they are not safer. You will see that children with disabilities who ride the short bus are vulnerable.

They are vulnerable because the employees who are entrusted with protecting our children do not do their job.  They claim they are stressed or over worked.  Join the club.  Ask the mother or father of a child with special needs how hard it is to parent them.  If anyone should be burned our, stressed or over worked, it is the parents.

School is Not Supposed to Hurt – Riding the Short Bus is Not Supposed to Hurt.  But hurt is does.

Keep squeaking those wheels – you do not have to take it anymore.

Dolphin Therapy is a Scam

From the British Newspaper the Guardian.  One persons opinion.

Dolphin therapy is a scam